As my close friends know, for the last seven years I’ve been dealing with a rare autoimmune condition called scleroderma (also known as systemic sclerosis).
Recent medical tests indicate that it is now impairing my lungs. This is a progressively debilitating and likely fatal development, and there is no known cure. I was not surprised by the latest test results, as I’ve been feeling my health deteriorate more rapidly over the last several months.
I’m posting this to be transparent and so none of my friends feel blindsided. I am totally open about what’s happening, and not bashful over it, so don’t feel you have to ignore it when you’re around me. If you have questions or want to just talk about it, feel free!
However, I also do not want it to define me. My life has been, and will continue to be, about so much more than this disease!